Understanding Lu

Our family's journey in living with Rett Syndrome.

Sunday, January 22, 2012

The aftermath

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It is hard to describe how this past week has been. At night, after Lucy has gone to bed I have cried quite a bit. We started seeing a new a...
Saturday, January 14, 2012

I believe...

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I believe that people have the right to believe whatever they want to believe, as long as they are not hurting others. I believe in being ...

My new hero

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So yesterday we saw a wonderful doctor at Children's Hospital in Pittsburg who helped us to get a little closer to an answer about why L...
Saturday, December 31, 2011

Not so composed...

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I was working on the last post yesterday and as I try to do, I was looking at the situation as calmly and rationally as I can. I try hard to...

Composed

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At Lucy's two week appointment with her first pediatrician in Clarion , I was so nervous that she was going to give me a hard time becau...
Wednesday, December 21, 2011

My selfish optimism

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The past couple of nights Lucy has wanted me to rock her a little bit either at bed or later in the night, and then she has fallen asleep in...
Friday, December 9, 2011

Shaffer L. 390

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So, Lucy's MRI came back almost normal. Her cerebellum is a little lower than it should be, but not enough to categorize her as having ...
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