Understanding Lu

Our family's journey in living with Rett Syndrome.

Monday, May 2, 2016

What You Don't See

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Last week Lu and I went to Lowes to buy some perrenial flowers for a little space we are creating in the yard to attract tiny critters. The ...
2 comments:
Monday, March 28, 2016

The moving target

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Dr. Sasha always reminds us that Rett Syndrome is a moving target, meaning it changes all of the time, without warning. For example one day ...
4 comments:
Thursday, March 3, 2016

Four Years Gone

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This was taken right around the day we received the phone call that Lu had Rett Syndrome. The anniversary of the date of the call just pa...
5 comments:
Thursday, January 28, 2016

"I want to watch..."

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This is what Lu looked like yesterday after she told me with her Tobii that she wanted to watch Despicable Me 2. She was so tickled to be wa...
2 comments:
Saturday, January 2, 2016

Smiles

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I'm not a big fan of Christmas, as I have mentioned before. I am a little Grinchey, mainly because of the materialistic aspect, which I ...
1 comment:
Thursday, November 26, 2015

Girl Scouts

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Some years I like to talk about all of the things I am thankful for in life, but this year, there is one new thing in our life, and in Lucy...
1 comment:
Wednesday, November 25, 2015

The past few weeks...

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We've kind of had a time of it the past few weeks: A few Monday's ago:   I took Lu to just a regular eye doctor for an exam. In the ...
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