Understanding Lu

Our family's journey in living with Rett Syndrome.

Saturday, December 31, 2011

Not so composed...

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I was working on the last post yesterday and as I try to do, I was looking at the situation as calmly and rationally as I can. I try hard to...

Composed

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At Lucy's two week appointment with her first pediatrician in Clarion , I was so nervous that she was going to give me a hard time becau...
Wednesday, December 21, 2011

My selfish optimism

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The past couple of nights Lucy has wanted me to rock her a little bit either at bed or later in the night, and then she has fallen asleep in...
Friday, December 9, 2011

Shaffer L. 390

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So, Lucy's MRI came back almost normal. Her cerebellum is a little lower than it should be, but not enough to categorize her as having ...
Sunday, December 4, 2011

Lucy's excellent adventure

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So here we three sit in a pretty bleak Day's Inn in Danville in preparation for Lucy's MRI tomorrow. I called this post "Lucy...
Sunday, November 27, 2011

My bad behavior

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I can feed Lucy a zillion meals and keep my cool, but then eventually the challenges that are involved get to me and I let my frustration ou...
Saturday, November 19, 2011

Thanksgiving

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Her beautiful blue eyes, her fluffy curly hair, the way her face lights up when she sees something or someone see recognizes and loves, her ...
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