Today Dr.Coffman, the neurologist from Pittsburg called and confirmed that Lucy does in fact have Rett Syndrome. It has been a very long and emotionally exhausting day, so I don't really feel like saying much, but here is a good site to visit for more information on the diagnosis:
www.rettsyndrome.org We have an appointment with the doctor on Wednesday afternoon to go over everything so I will try to do a real post after that some time.
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