Understanding Lu

Our family's journey in living with Rett Syndrome.

Wednesday, September 9, 2015

"Clever" Lu

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Back in July we had the opportunity to spend the whole day with the one and only Linda Burkhart! It was so much fun, and so helpful! Linda h...
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Sunday, September 6, 2015

Thank you!

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Yesterday was the Strollathon. Somehow it was near 90 degrees for the second year in a row, and Lu does not love that type of heat, but she ...
Wednesday, August 12, 2015

Why We Stroll

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The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we st...
Wednesday, July 29, 2015

But on the other hand...

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This is a sequel to my last post, "The Hunch". The fear of the unknown can sometimes be so overwhelming, and long-lasting that it ...
Friday, July 24, 2015

The Hunch

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Three years ago my body went from experiencing a normal amount of occasional stress to seeming to be in a constant state of "preparedne...
Tuesday, June 16, 2015

With a little help from her friends

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Chad is my very best friend. There is no one I'd rather be on this journey with day in and day out besides him. We drive each other bonk...
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Friday, June 5, 2015

Ups and Downs

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As the title suggests, we have had a lot of ups and downs lately. I have felt a little more down than up and didn't want to write a big ...
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