Understanding Lu

Our family's journey in living with Rett Syndrome.

Wednesday, August 12, 2015

Why We Stroll

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The annual Pennsylvania Strollathon is coming up on September 5th this year! It's being held in Pittsburgh again at the nice park we st...
Wednesday, July 29, 2015

But on the other hand...

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This is a sequel to my last post, "The Hunch". The fear of the unknown can sometimes be so overwhelming, and long-lasting that it ...
Friday, July 24, 2015

The Hunch

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Three years ago my body went from experiencing a normal amount of occasional stress to seeming to be in a constant state of "preparedne...
Tuesday, June 16, 2015

With a little help from her friends

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Chad is my very best friend. There is no one I'd rather be on this journey with day in and day out besides him. We drive each other bonk...
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Friday, June 5, 2015

Ups and Downs

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As the title suggests, we have had a lot of ups and downs lately. I have felt a little more down than up and didn't want to write a big ...
Tuesday, May 19, 2015

For the birthday girl

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Today marks five years of life for Lucille May Shaffer. I can't even believe it! Chad has been saying all year that he can't believe...
Sunday, April 19, 2015

#icandomorethanrequest

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A hash tag has been created for sharing pictures and stories on Facebook of AAC users doing more than just making requests. I posted a pictu...
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