Understanding Lu
Our family's journey in living with Rett Syndrome.
Tuesday, June 16, 2015
With a little help from her friends
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Chad is my very best friend. There is no one I'd rather be on this journey with day in and day out besides him. We drive each other bonk...
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Friday, June 5, 2015
Ups and Downs
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As the title suggests, we have had a lot of ups and downs lately. I have felt a little more down than up and didn't want to write a big ...
Tuesday, May 19, 2015
For the birthday girl
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Today marks five years of life for Lucille May Shaffer. I can't even believe it! Chad has been saying all year that he can't believe...
Sunday, April 19, 2015
#icandomorethanrequest
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A hash tag has been created for sharing pictures and stories on Facebook of AAC users doing more than just making requests. I posted a pictu...
Tuesday, March 24, 2015
The Pity Smile
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When we head out into the world, there is no missing us. I understand that. Not only is Lu in a wheelchair, but she has to have a chest harn...
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Sunday, March 22, 2015
Anxiety in Rett Syndrome
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When you look up Rett Syndrome online, or anywhere else, you will find "anxiety" in amongst the many severe symptoms of the condit...
Thursday, March 12, 2015
Three little words...
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Lu had a cold again for three weeks and it was miserable. In the middle of the cold was her Daddy's birthday. Throughout the day I model...
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