Understanding Lu

Our family's journey in living with Rett Syndrome.

Tuesday, May 19, 2015

For the birthday girl

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Today marks five years of life for Lucille May Shaffer. I can't even believe it! Chad has been saying all year that he can't believe...
Sunday, April 19, 2015

#icandomorethanrequest

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A hash tag has been created for sharing pictures and stories on Facebook of AAC users doing more than just making requests. I posted a pictu...
Tuesday, March 24, 2015

The Pity Smile

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When we head out into the world, there is no missing us. I understand that. Not only is Lu in a wheelchair, but she has to have a chest harn...
1 comment:
Sunday, March 22, 2015

Anxiety in Rett Syndrome

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When you look up Rett Syndrome online, or anywhere else, you will find "anxiety" in amongst the many severe symptoms of the condit...
Thursday, March 12, 2015

Three little words...

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Lu had a cold again for three weeks and it was miserable. In the middle of the cold was her Daddy's birthday. Throughout the day I model...
1 comment:
Thursday, February 26, 2015

February 27, 2012

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Tomorrow will be three years since we found out Lu has Rett Syndrome. When Dr. Coffman called and told me the news, all I said was, "Ok...
Friday, February 13, 2015

My Baby Asparagus Patch or "Being Zen"

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Sometimes people, other parents particularly, will ask me what we have done to assist Lu in continually making progress as a competent alter...
5 comments:
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