Understanding Lu

Tomorrow will be three years since we found out Lu has Rett Syndrome. When Dr. Coffman called and told me the news, all I said was, "Ok...

Sometimes people, other parents particularly, will ask me what we have done to assist Lu in continually making progress as a competent alter...

Yesterday I ran up to the little local store and the lady who owns it is so sweet and always asks about Lu. Yesterday she said, "What...

I let some sadnesses simmer pretty close to the surface, but one sadness that I keep buried deep, deep down is my heartbreak at not having a...

So, Lucy is still not 100% better. She's working hard on it though. Last Sunday she woke up with her cough worse again and a fever of 10...

 "It could be worse."  "Somebody else always has it worse than you."  I think it is so unfortunate that these two statem...

Lu has still slept A LOT today, but she has had brief periods of time of being awake and smiling. We all even ate breakfast and lunch at the...