Understanding Lu

Lu has still slept A LOT today, but she has had brief periods of time of being awake and smiling. We all even ate breakfast and lunch at the...

Lu woke up on Christmas Eve morning sounding phlegmy. She had her morning feed and napped, and when she woke up she had the "sick eyes...

So, about the shaking episodes... Dr.  Sasha increased the depakote a second time and I kept a log for two weeks to see if there was improve...

 I have mentioned in the past the plethora of chairs that we have for Lu in an effort for her to be: comfortable, upright, or laying down, n...

We saw Dr. Sasha on Friday. After watching several new videos of the shaking episodes Lu has been having and listening to us explain how the...

Last year we started a tradition of having a little Halloween party for Lu and her pals so she can enjoy Halloween without the usual trick o...

Rett Syndrome is so maddeningly stupid that I just can't get over it sometimes. Things had been going really well with Lu since getting ...