Understanding Lu

We saw Dr. Sasha on Friday. After watching several new videos of the shaking episodes Lu has been having and listening to us explain how the...

Last year we started a tradition of having a little Halloween party for Lu and her pals so she can enjoy Halloween without the usual trick o...

Rett Syndrome is so maddeningly stupid that I just can't get over it sometimes. Things had been going really well with Lu since getting ...

I just wanted to share a link to a sister blog I have created called Teaching Lu. As the title suggests, it will be all about how I educate ...

I read this article by a father of a son with special needs yesterday. I have read a similar one in the past. Take a moment to read it: http...

Last Sunday morning began like any other morning. Lu had her feed, watched cartoons, and was in a fine mood. When we brought her out to the ...

On September 6th, we will be joining other families in a strollathon, the signature fundraiser of Rettsyndrome.org (formerly known as the I...