Understanding Lu
Our family's journey in living with Rett Syndrome.
Saturday, October 18, 2014
2nd Annual Shaffer Halloween Bash
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Last year we started a tradition of having a little Halloween party for Lu and her pals so she can enjoy Halloween without the usual trick o...
Wednesday, October 8, 2014
Seizures and not seizures
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Rett Syndrome is so maddeningly stupid that I just can't get over it sometimes. Things had been going really well with Lu since getting ...
Tuesday, October 7, 2014
Teaching Lu
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I just wanted to share a link to a sister blog I have created called Teaching Lu. As the title suggests, it will be all about how I educate ...
Sunday, September 21, 2014
"Healthy"
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I read this article by a father of a son with special needs yesterday. I have read a similar one in the past. Take a moment to read it: http...
Tuesday, September 2, 2014
The Hard Way
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Last Sunday morning began like any other morning. Lu had her feed, watched cartoons, and was in a fine mood. When we brought her out to the ...
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Friday, August 15, 2014
Strolling for a Cure
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On September 6th, we will be joining other families in a strollathon, the signature fundraiser of Rettsyndrome.org (formerly known as the I...
Saturday, August 9, 2014
Every Single Word
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You know, I wonder if people who read my blog ever think, "Ok Julie, we get it, Lucy is awesome, and she talks to you all the time!...
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