Understanding Lu

Our family's journey in living with Rett Syndrome.

Sunday, September 21, 2014

"Healthy"

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I read this article by a father of a son with special needs yesterday. I have read a similar one in the past. Take a moment to read it: http...
Tuesday, September 2, 2014

The Hard Way

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Last Sunday morning began like any other morning. Lu had her feed, watched cartoons, and was in a fine mood. When we brought her out to the ...
2 comments:
Friday, August 15, 2014

Strolling for a Cure

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On September 6th, we will be joining other families in a strollathon, the signature fundraiser of Rettsyndrome.org (formerly known as the I...
Saturday, August 9, 2014

Every Single Word

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You know, I wonder if people who read my blog ever think, "Ok Julie, we get it, Lucy is awesome, and she talks to you all the time!...
1 comment:
Thursday, July 31, 2014

All That I Am?

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When I decided not to return to work, not even part-time, after Lucy was born, I went in one day to tell my boss about my decision and to te...
Thursday, July 24, 2014

Longing For Winter

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Only when we are in Nanny and Pappy's pool or eating good food at a picinic am I in favor of summer this year.  I am feeling intolerable...
Sunday, July 20, 2014

The Diving Bell and the Butterfly: a book report for grown ups

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I just finished a book titled, "The Diving Bell and the Butterfly" by a Jean-Dominique Bauby.  The book also became a "major ...
1 comment:
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