Understanding Lu

On September 6th, we will be joining other families in a strollathon, the signature fundraiser of Rettsyndrome.org (formerly known as the I...

You know, I wonder if people who read my blog ever think, "Ok Julie, we get it, Lucy is awesome, and she talks to you all the time!...

When I decided not to return to work, not even part-time, after Lucy was born, I went in one day to tell my boss about my decision and to te...

Only when we are in Nanny and Pappy's pool or eating good food at a picinic am I in favor of summer this year.  I am feeling intolerable...

I just finished a book titled, "The Diving Bell and the Butterfly" by a Jean-Dominique Bauby.  The book also became a "major ...

Ever since our first appointment with Dr. Sasha two years ago, I have been always on the verge of writing a post about the possibility of a ...

It has crossed my mind many times already this summer what was going on with Lu last summer...a lot and not much of it was good. We were afr...