Understanding Lu

Our family's journey in living with Rett Syndrome.

Thursday, July 31, 2014

All That I Am?

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When I decided not to return to work, not even part-time, after Lucy was born, I went in one day to tell my boss about my decision and to te...
Thursday, July 24, 2014

Longing For Winter

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Only when we are in Nanny and Pappy's pool or eating good food at a picinic am I in favor of summer this year.  I am feeling intolerable...
Sunday, July 20, 2014

The Diving Bell and the Butterfly: a book report for grown ups

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I just finished a book titled, "The Diving Bell and the Butterfly" by a Jean-Dominique Bauby.  The book also became a "major ...
1 comment:
Friday, July 18, 2014

Not "if", but "when"

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Ever since our first appointment with Dr. Sasha two years ago, I have been always on the verge of writing a post about the possibility of a ...
Tuesday, July 8, 2014

Summer Freedom

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It has crossed my mind many times already this summer what was going on with Lu last summer...a lot and not much of it was good. We were afr...
Wednesday, July 2, 2014

In case you were wondering...

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In case you were wondering, if you happen to be in a public place and you encounter a person with a disability, it is not good manners to bl...
2 comments:
Monday, June 23, 2014

A big girl: The importance of age-appropriateness

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Lucy isn't a baby anymore. She is a big four year old girl. I imagine that since her physical abilities have not progressed much past th...
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