Understanding Lu
Our family's journey in living with Rett Syndrome.
Tuesday, May 27, 2014
"But what about socialization?!"
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Any parent that has ever even expressed (out loud) a vague interest in the mere possibility of home schooling their child(ren) have inevitab...
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Saturday, May 24, 2014
Happy Birthday to Lu!
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Tuesday, May 20th Lu turned 4! Last Saturday we had a nice party for her that was pretty busy and crazy, but she smiled the whole time! Here...
Thursday, May 8, 2014
Thank you friends at Minitab, Inc.
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When it comes to buying gifts for Lucy for Christmas and her birthday, I try to not go overboard. I follow a guideline of buying her: someth...
Tuesday, May 6, 2014
A Big Weekend
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In a contradiction, and a conflict in my heart, fortunately and unfortunately, Lucy qualified for the Make-A-Wish program. People were often...
Friday, April 18, 2014
"I feel tired"
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The title of this post is in quotations because it is a quote from Lucy...her first grammatically correct complete sentence! And this she sa...
Saturday, April 12, 2014
And what Dr. Sasha said about the tooth grinding:
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Here is Lu at about 5:00pm yesterday: We left for New York at 4:00am yesterday morning. So I woke Lu up at about 3:45. And this is her beaut...
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Tooth Grinding
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In the picture above, notice how Lucy's teeth are clenched tightly together and how her jaw juts to the side. She is, or should I say Re...
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