Understanding Lu

The title of this post is in quotations because it is a quote from Lucy...her first grammatically correct complete sentence! And this she sa...

Here is Lu at about 5:00pm yesterday: We left for New York at 4:00am yesterday morning. So I woke Lu up at about 3:45. And this is her beaut...

In the picture above, notice how Lucy's teeth are clenched tightly together and how her jaw juts to the side. She is, or should I say Re...

Today is my 33rd birthday. It surprises me to realize how very young that is. I feel much older a lot of the time. Physically, mentally, emo...

I have a confession.  Rett Syndrome manifests itself in a wide variety of sounds that constantly come bullying their way out of Lucy. CONSTA...

I have two posts started and I just haven't been able to actually finish anything in a few weeks. So I thought I would just do a lazy pi...

This morning I entered Lu in a contest to win an adaptive tricycle! We have been talking about getting her one, and how to get her one for q...