Understanding Lu

I have a confession.  Rett Syndrome manifests itself in a wide variety of sounds that constantly come bullying their way out of Lucy. CONSTA...

I have two posts started and I just haven't been able to actually finish anything in a few weeks. So I thought I would just do a lazy pi...

This morning I entered Lu in a contest to win an adaptive tricycle! We have been talking about getting her one, and how to get her one for q...

I'm not sure if you can tell in her face as much as I want from these two pictures, but Lu has gained over 5 pounds since the top pictur...

Linda Burkhart, the wonderful woman who has trained us to use the PODD, told me a month or so ago about a version of the PODD that Gayle Po...

There are several versions of the stages of grief, some versions have more stages.  It is generally used to explain a person's gri...

 Well, today begins Lucy's fourth vomit-free day. She did not have a day for about a week and a half where she didn't throw up at le...