Understanding Lu

Our family's journey in living with Rett Syndrome.

Tuesday, February 25, 2014

Healthy and happy

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I'm not sure if you can tell in her face as much as I want from these two pictures, but Lu has gained over 5 pounds since the top pictur...
Friday, February 14, 2014

Just Do It

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Linda Burkhart, the wonderful woman who has trained us to use the PODD, told me a month or so ago about a version of the PODD that Gayle Po...
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Tuesday, February 11, 2014

Mid-winter Slump

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There are several versions of the stages of grief, some versions have more stages.  It is generally used to explain a person's gri...
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Friday, January 31, 2014

Getting Back on Track

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 Well, today begins Lucy's fourth vomit-free day. She did not have a day for about a week and a half where she didn't throw up at le...
Thursday, January 23, 2014

Waving the White Flag

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The Germ A mighty creature is the germ, Though smaller than a pachyderm. His customary dwelling place Is deep within the human race....
Wednesday, January 22, 2014

The Forest and the Trees

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I have discovered over the past few months, a method for coping with how overwhelming Rett Syndrome can be, that seems to be working. I real...
Tuesday, January 21, 2014

Mothering articles

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Below are links to other blog posts I have had the pleasure of being invited to contribute to the online community of Mothering. This site u...
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