Understanding Lu

Our family's journey in living with Rett Syndrome.

Saturday, December 28, 2013

Update

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I Things are still going very well. Lu had a good night of sleep, and she is on her second "bolus" feeding which means a larger am...
1 comment:
Friday, December 27, 2013

Pre-op and post-op

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Lu's upper GI was fine yesterday. She cried at the end and then cried for a half hour afterward, but she had a good nights sleep. Her IV...
Tuesday, December 24, 2013

A mind of her own

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This is Lucy's "new" dollie. I rescued her from Goodwill a few weeks ago and cleaned her all up, and even crocheted her up...
1 comment:
Tuesday, December 17, 2013

Just some little tidbits...

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Lu can't just sit in a chair in the living room and watch her cartoons because there is no support and she easily falls over. She does s...
Friday, December 6, 2013

December 26th

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Once upon a time Lu couldn't drink my milk. I've mentioned this before and have talked about how I felt like it was just the worst t...
2 comments:
Tuesday, November 19, 2013

The Essence of Human Life

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This is a reading list Lu made up using her Tobii the other day. I have been working at making pages on the Tobii of the covers of a...
Saturday, November 16, 2013

29 pounds

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This is the fourth blog post I have started since November 5th and I just can't seem to get one finished. I'll try to finish this on...
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