Understanding Lu

Our family's journey in living with Rett Syndrome.

Thursday, August 29, 2013

EEG

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Here I sit in the Bronx, watching sweet Lu sleep in a giant steel crib. She's having an extended EEG to monitor her irregular breathing ...
6 comments:
Wednesday, August 28, 2013

"What are you going to tell me?"

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So, the battle continues with the secondary insurance, Gateway Health, but we finally have decided to by pass them and have the Tobii order...
Thursday, August 22, 2013

The Rising Sun

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Lu and I (thanks to Lu) were up to watch the sunrise yesterday morning: And here is her artistic interpretation of it: We used her eye gaze ...
Monday, August 19, 2013

We're on vacation!

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I took Lu down to the edge of the water while we were still in our jammies on our first morning, and then later when we were talking about g...

This I Believe

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I just wanted to let my readers know that this Thursday, August 22nd at 5:45pm, the WPSU radio station will be airing an essay I wrote calle...
1 comment:
Saturday, August 17, 2013

Super Fab Lab

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The other day I caught a stick bug for Lu. I put it in a mason jar with holes in the lid and we observed it for awhile. Then we got her iPad...
2 comments:
Saturday, August 10, 2013

Puréeing

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This is a plate that contains a cheeseburger, minus the bun, with ketchup and cheese, and sweet potato fries with ranch dressing. This is ho...
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