Understanding Lu

Our family's journey in living with Rett Syndrome.

Wednesday, October 24, 2012

The one where I whine a lot...

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I am teetering on the brink of a break down. Not a real one, requiring like, medical intervention or anything (at least I don't think s...
1 comment:
Tuesday, October 16, 2012

Goodbye to a good boy

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On Sunday we went outside to practice in Lucy's new walker we are borrowing for the week. It was a beautiful fall day. Elmer has been pr...
1 comment:
Saturday, September 29, 2012

Sequel

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I forgot to mention one more totally amazing thing that Dr. Sasha said to us on Friday. It was the last thing she said to us, but let me giv...
1 comment:
Saturday, September 22, 2012

Little Ole Awesome Lu

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Well, it is 7:46pm and we are on our way home from the Big Apple again!  Today we had our second appointment with Dr. Sasha, the Rett specia...
3 comments:
Friday, September 7, 2012

An education for others

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This weekend has been busy with parties and picnics and at one I became aware of something I have not really thought much about.  A close r...
2 comments:
Monday, September 3, 2012

The windmills and the tulips

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Before continuing, please go to the link below and read the short story written by someone else... http://ndsccenter.org/resources_oldold/h...
1 comment:
Saturday, September 1, 2012

Lucy's Great August Adventures

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We have been VERY busy since getting back from vacation and I had optimistically taken photos of all of the momentus occasions that have t...
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