Understanding Lu

Well, here we are finally! Chad and I are at the World Rett Syndrome Congress in New Orleans! We flew in yesterday and it was a breeze...wel...

Last summer, before we knew anything about Rett Syndrome and assumed that Lu would just "catch up" as the neurologist suggested, I...

I'll save everyone the suspense...Mother's Day made me mad...that was the surprise. On stupid Facebook I read all kinds of things ab...

The other day I was thinking of some little thing that Lucy had done and I was smiling and thinking about how great she is and how hard she ...

Next month will mark the passing of five years since Chad and I decided to sell our home, quit our jobs, and move to Clarion so he could go ...

Last week was rough. I spent most of it stressing out about getting Lucy's therapies increased as much as I could...banging my head agai...

Yesterday we left here at 6:30am and returned at 9:30pm! Our journey took us to the Bronx in New York City...one of the last places I would ...