Understanding Lu

On Monday we knew our life had become drastically different than we had ever imagined it would be. Today blew Monday completely out of the w...

Today Dr.Coffman, the neurologist from Pittsburg called and confirmed that Lucy does in fact have Rett Syndrome. It has been a very long and...

So this past Thursday marked 5 weeks since Lucy had her bloodwork drawn. We heard back about the blood part of her metabolic test and it was...

I told my friend the other day that I haven't written anything on here for a bit because all I feel like doing is whining and I don'...

It is hard to describe how this past week has been. At night, after Lucy has gone to bed I have cried quite a bit. We started seeing a new a...

I believe that people have the right to believe whatever they want to believe, as long as they are not hurting others. I believe in being ...

So yesterday we saw a wonderful doctor at Children's Hospital in Pittsburg who helped us to get a little closer to an answer about why L...